| TIME | Meeting rooms at Norra Latin | Activities – Speakers – Seminars |
|---|
| 08:30 | Level 2
Level 3 | Registration opens
Welcome to visit our exhibitors |
| 09:30 | Aulan – Assembly Hall, level 3 | Welcome and opening remarks by
– Penilla Gunther (Founder of FOKUS Patient®)
– Neil Johnson (CEO & Founder of Global Heart Hub) |
| 09:35 | Aulan level 3 | Opening session: The patient perspectives – meet the first one for the day:
– Jonas Wahlström (Owner of the Skansen-Aquarium, Stockholm, Sweden)
Moderator:
– Hanna Brodda (Science Journalist Mediefy, Sweden) |
| 09:50 | Aulan level 3 | Data – for trials, treatments and research
Cardiovascular Trials – there is still a need of research and new treatments for CVD
(In English)
– Dr Faiez Zannad (Founder of CVCT – Cardiovascular Trials Forum, Professor Emeritus, Therapeutics and Cardiology, University de Lorraine, Nancy, France)
– Dr Peter Asplund (Governmental Investigator, “Improved conditions for Clinical Trials in Sweden” Örebro, Sweden)
Moderator:
– Frida Lawenius (Vice President SwedenBio) |
| 10:30 | | Coffee Break – Swedish Fika |
| 10:50 | Aulan level 3 | How to use Quality Registers at Swedish and European levels for the benefit of the patients
(In Swedish)
– Dr Peter Vasko (Cardiologist at Linköping University Hospital, Chairman of Swedeheart and RiksSvikt – Swedish Quality Registers for CVD in general and HF)
Moderator:
– Frida Lawenius (Vice President SwedenBio) |
| 11:20 | Aulan level 3 | “ASCVD – Intro of Invisible Nation”
Global Heart Hub – ASCVD and The Campaign “Invisible Nation”
(In English)
Introduction by:
– Neil Johnson (CEO Global Heart Hub, Ireland)
An overview of ASCVD
(In Swedish)
– Dr Stefan James (Professor of Cardiology at Uppsala University, Scientific Director of Uppsala Clinical Research Center and Senior Interventional Cardiologist at Uppsala University Hospital, Sweden.)
“Spotlight on FH”
(In English)
– Magdalena Daccord (Chief Executive the European FH Patient Network, Switzerland)
Moderator:
– Dr Martin Stagmo (Country Medical Director Bayer Sweden, Fellow of the European Society of Cardiology) |
| 12:00 | | Break |
| 12:05 | Aulan level 3 | How can we accelerate that innovative interventions within CVD reaches patients in need?
(In Swedish)
Introduction by:
– Tobias Bäckström (Scientific Director of Novartis Nordics)
Panelists:
– Dr Peter Vasko (Cardiologist at Linköping University Hospital, Chairman of Swedeheart and RiksSvikt – Swedish Quality Registers for CVD in general and HF)
– Dr Stefan James (Professor of Cardiology at Uppsala University, Scientific Director of Uppsala Clinical Research Center a senior Interventional Cardiologist at Uppsala University Hospital Sweden)
– Mattias Fredricson (Unit Manager, National Guidelines, National Board of Welfare)
– Britta Berglund (Vice President of The HeartLung Association Botkyrka-Salem)
Moderator:
– Lotta Liljelund (Chef Public Affairs, Novartis Sverige) |
| 12:45 | Restaurant Cabaré,
across the street | Lunch |
| 13:45 | | Seminars in parallel tracks – The way to, and through a diagnosis. |
| Aulan level 3 | Waiting for a diagnosis that might not come
(In English)
– Lisa Salberg (Founder & CEO of HCMA – Hypertrophic Cardiomyopathy Association, USA)
Moderator:
– Dr Per Wierup (PhD, Senior Consultant Cardiac Surgeon, Skåne University Hospital, Sweden) |
| Meeting Room 362 level 3 | The Heart Failure Patient Charter” Global Heart Hub
(In English)
”Heart Failure – Optimal HF Patient Care Pathway”
– Dr Marilyn Prasun (Chairperson, The Heart Failure Patient Foundation, Carle BroMenn Endowed Professor Mennonite College of Nursing at Illinois State University, USA)
”My experience as a heart failure patient”
– Marc Bains (Co-Founder at The HeartLife Foundation, Vancouver, Canada)
Moderator:
– Aiste Staraite (Chair GHH Heart Failure Patient Council, Lithuania) |
| Meeting Room 358 level 3 | Heart Valve Diseases Pathway
(In English)
”Heart Valve Disease – common, serious but treatable”
– Dr Martin Stagmo (Country Medical Director Bayer Sweden, Fellow of the European Society of Cardiology)
”My experience as a heart valve diseases patient”
– Jens Näumann (CEO at the German Patient Organization Initiative Herzklappe e.V.)
”Creating a better patient journey for heart valve patients”
– Suzanne Wait (Managing Director of The Health Policy Partnership, London, England)
Moderator:
– Teresa Glynn (Development Executive – Global Heart Hub Heart Valve Disease Council, Ireland)
|
| 14:25 | | Break |
| 14:30 | | Seminars in parallel tracks – From prevention to follow-up |
| Meeting Room 362 level 3 | The connection between CVD and other diseases
(In Swedish)
– Dr Paolo Parini (Professor, Senior Consultant, Director of Research & Development, Education and Innovation Department of National and International Affairs, and Inflammation and Infection Theme, Karolinska University Hospital, Sweden)
– Dr Elham Hedayati (M.D., Ph.D., Associate Professor & Senior consultant in Clinical Oncology & Head of Karolinska Centre for Clinical Trials/Studies, Karolinska University Hospital)
– Thomas Magnusson (President DiOS – The Diabetes Organization in Sweden)
Moderator:
– Hanna Brodda (Science Journalist, Mediefy, Sweden) |
| Aulan level 3 | Women and Heart – Global Heart Hub
(In English)
– Celine Gorre (CEO, WomenHeart: The National Coalition for Women with Heart Disease, USA)
– Dr Karin Schenck Gustafsson (Professor Cardiology, Director Centre of Genus Medicine, Karolinska Institute and representative of 1.6 miljonerklubben, Sweden)
Moderator:
– Neil Johnson (CEO, Global Heart Hub, Ireland) |
| 15:10 | | Break |
| 15:15 | | Seminars in parallel tracks – Knowledge creates participation |
| Meeting Room 358 | Hypertrophic Cardiomyopati – a thick muscle in different shapes
(In Swedish and English)
– Lisa Salberg (President & CEO HCMA, USA)
– Lottis Hörting & Marianne Barret Witteberg (Swedish Patient representatives)
Moderator:
– Dr Per Wierup (PhD, Senior Consultant Cardiac Surgeon, Skåne University Hospital, Sweden) |
| Aulan level 3 | Heart Failure Policy Network – creating awareness, knowledge, and policy
(In English)
Introduction about HFPN
– Suzanne Wait (CEO, Health Policy Partnership, UK)
Why, and how the reports and facts from HFPN can be used in other languages
– Steven Macari (President, Association Vie Et Cœur, France)
– Henrik Höjman (Market Access Manager, CSL Vifor Pharma, Sweden)
Moderator:
– Penilla Gunther (FOKUS Patient® & Steering Committee Member HFPN) |
| 15:55 | | Coffee Break – Swedish Fika! |
| 16:15 | Aulan level 3 | Panel discussion – “Strategies for CVD at different levels”
(In Swedish and English)
Short introduction by each panelist:
– Emanuele Degortes (Global Head of Patient, Innovation and Access Policy, VIFOR Pharma)
– Desiree Pethrus (KD) (Regional Councilor, Region Stockholm and Member of the National Board of Highly Specialized Health Care)
– Anders Åkesson (President Heart-Lung Association)
Moderators:
– Penilla Gunther (FOKUS Patient®, former MP Sweden)
– Neil Johnson (Founder & CEO Global Heart Hub)
|
| 16:55 | | Closing Remarks – Thank you
– Mattias Hellström (FOKUS Patient®)
– Neil Johnson (Global Heart Hub) |
| 17:00 | | The End |
| 19:00 – 22:00 | Norra Latin all floors | Networking event with food, drinks and music!
Special registration needed. |
